How do we make a healthier Cornwall and Isles of Scilly?

NHS Continuing Healthcare (NHS CHC) is a package of care for adults aged 18 or over which is arranged and funded solely by the NHS. To receive NHS CHC funding, individuals must be assessed by integrated commissioning boards (ICBs) according to a legally prescribed decision-making process to determine whether the individual has a ‘primary health need’.

This process is set out in the The National Framework published by the Department of Health and Social Care.

This survey

This survey is about your experience of the services provided by Cornwall and Isles of Scilly Integrated Care Board's NHS CHC assessment and appeals process. We are seeking your views on how well the service works and how it can be improved. 

This survey sometimes asks you to provide the reasons why you have given the answer you have, which you do not have to give. These questions are optional. If you do provide a reason, however, this will help us to improve the process for the future.

Please note that this survey is not a means of appealing or disputing the outcome of your assessment. There are separate processes for this, which your assessor can tell you about.

Privacy notice: 
We will use the information you provide to inform the development of health and care services in Cornwall and Isles of Scilly. The Data Controller for the information you provide in this survey is Cornwall Council, New County Hall, Treyew Road, Truro TR1 3AY. Data Protection Registration Number: Z1745294. Once the survey has closed, your data will be held within Cornwall Council’s secure network and premises for up to 2 years. Where we ask you to supply personal data on this form, we will only make access to this data available to authorised members of staff who are required to process it for the purposes outlined in this privacy notice. Please note that any other information you provide such as free text responses may be published in full, at a later date but only for the purposes outlined here.

The survey results will be analysed regularly by the Continuing Healthcare Team, who are part of the NHS Cornwall and Isles of Scilly Integrated Care Board.

We're keen to find out what you think will make Cornwall and Isles of Scilly a healthier place to live and find out if you would be interested in working with us to shape future health and care services.

This survey asks some questions about what support could help you keep healthy and asks for your ideas that will help us shape a new health and well being prevention strategy and communications campaign.

We also want to recruit local people to join our engagement network so they can be kept informed and involved in shaping health and care services. The survey closes at the end of April 2024. 

We will then be in touch with those who have asked to join our engagement network.

Privacy notice: 
We will use the information you provide to inform the development of health and care services in Cornwall and Isles of Scilly. The Data Controller for the information you provide in this survey is Cornwall Council, New County Hall, Treyew Road, Truro TR1 3AY. Data Protection Registration Number: Z1745294. Once the survey has closed, your data will be held within Cornwall Council’s secure network and premises for up to 2 years. Where we ask you to supply personal data on this form, we will only make access to this data available to authorised members of staff who are required to process it for the purposes outlined in this privacy notice. Please note that other information you provide, such as responses to open questions, may be published in full.

The survey results will be analysed and a summary report will be shared through the Let's Talk website.

Do you, or someone you care for, have a respiratory condition?

Or perhaps you have a family history of respiratory conditions, or know someone well who has a respiratory condition? 

We are looking for local people across Cornwall and Isles of Scilly with lived experience of respiratory condition and respiratory condition services, to provide feedback and ideas to help us shape the way we provide care in the future.

What's involved? 

We want to form a group of people with lived experience of respiratory conditions, so we can ask for your help to provide feedback on current and shape future services. 

If you join our group, there will be different ways for you to get involved and have your say, with both online / virtual and in-person opportunities available. This could include taking part in surveys, giving feedback in a group discussion, to being involved in work to 'design' future services alongside our staff.

You will be able to get involved in ways that suit you, and to share your feedback on matters that are most important to you.

Register your interest

Please complete this online form by Sunday 30 June to register your interest. There is also a section on the form where we ask you what we can do to help make it possible for you to attend.

Privacy notice: 
We will use the information you provide to inform the development of health and care services in Cornwall and Isles of Scilly. The Data Controller for the information you provide in this survey is Cornwall Council, New County Hall, Treyew Road, Truro TR1 3AY. Data Protection Registration Number: Z1745294. Once the survey has closed, your data will be held within Cornwall Council’s secure network and premises for up to 2 years. Where we ask you to supply personal data on this form, we will only make access to this data available to authorised members of staff who are required to process it for the purposes outlined in this privacy notice. Please note that other information you provide, such as responses to open questions, may be published in full. The survey results will be analysed and a summary report will be shared through the Let's Talk website.

Do you, or someone you care for, have cardiovascular disease? - by this we mean the range of conditions that affect the heart or blood vessels, such as high blood pressure, angina, heart attack or strokes.

Or perhaps you have a family history of cardiovascular disease/ heart problems, or know someone well who has cardiovascular disease? 

We are looking for local people across Cornwall and Isles of Scilly with lived experience of cardiovascular disease/ heart problems and cardiovascular disease/ heart services, to provide feedback and ideas to help us shape the way we care for people at risk of or who have cardiovascular disease.

What's involved? 

We want to form a group of people with lived experience of cardiovascular disease/ heart problems, so we can ask for your help to provide feedback on current and future services. 

If you join our group, there will be different ways for you to get involved and have your say, with both online / virtual and in-person opportunities available. This could include taking part in surveys, giving feedback in a group discussion, to being involved in work to 'design' future services alongside our staff.

You will be able to get involved in ways that suit you, and to share your feedback on matters that are most important to you.

Register your interest

Please complete this online form by Sunday 30 June to register your interest. There is also a section on the form where we ask you what we can do to help make it possible for you to attend.

Privacy notice: 
We will use the information you provide to inform the development of health and care services in Cornwall and Isles of Scilly. The Data Controller for the information you provide in this survey is Cornwall Council, New County Hall, Treyew Road, Truro TR1 3AY. Data Protection Registration Number: Z1745294. Once the survey has closed, your data will be held within Cornwall Council’s secure network and premises for up to 2 years. Where we ask you to supply personal data on this form, we will only make access to this data available to authorised members of staff who are required to process it for the purposes outlined in this privacy notice. Please note that other information you provide, such as responses to open questions, may be published in full. The survey results will be analysed and a summary report will be shared through the Let's Talk website.

Do you, or someone you care for, have an interest in health and care issues?

Or perhaps you have a family member whose experience of health and care could help shape services? 

We are looking for people who are already actively involved or interested in the work of our health and care system in Cornwall and Isles of Scilly to join our People's Engagement Alliance.

The People's Engagement Alliance will:

• be kept informed on engagement opportunities across the ICS;
• provide feedback from their area/group where needed; 
• get involved in relevant engagement activity that interests them;
• come together to share experience and views.

If you are already a member of any of the following groups, or belong to another group that we regularly work with, this could be another way for you to put forward your views on health and social care topics:

• a GP Patient Participation Group (PPG)
• an Expert Reference Group
• a Clinical Reference Group
• a current Integrated Care Board (ICB) working group
• an Integrated Care Area (ICA) forum
• a Community Area Partnership
• a Healthwatch Partnership Board
• Cornwall Voluntary Sector Alliance
• or belong to another group that we regularly work with?
  

Time commitment

Around 15 to 30 minutes each month, although there is likely to be an opportunity to contribute more or less of your time in any given month, depending on your interest and ability to take part in discussions.

Express your interest 

If you are interested in joining our People's Engagement Alliance, please fill out this online form by DATE and we get back in touch with details of the next steps.

Privacy notice: 
We will use the information you provide to inform the development of health and care services in Cornwall and Isles of Scilly. The Data Controller for the information you provide in this survey is Cornwall Council, New County Hall, Treyew Road, Truro TR1 3AY. Data Protection Registration Number: Z1745294. Once the survey has closed, your data will be held within Cornwall Council’s secure network and premises for up to 2 years. Where we ask you to supply personal data on this form, we will only make access to this data available to authorised members of staff who are required to process it for the purposes outlined in this privacy notice. Please note that other information you provide, such as responses to open questions, may be published in full. The survey results will be analysed and a summary report will be shared through the Let's Talk website.

Do you, or someone you care for, have an interest in health and care issues?

Or perhaps you have a family member whose experience of health and care could help shape services? 

Digital People's Panel 

We want to recruit local people, representative of our population, to help with engagement on a range of topics to do with health and care services. 

Working with our partners, including NHS providers, local councils, Healthwatch, community and voluntary services, we will provide a range of engagement opportunities including:

• Receiving a monthly ‘Cornwall together’ e-newsletter - to keep members updated on news and engagement opportunities with links to complete surveys or take part in events or focus groups. 
• Asking members to complete at least 4 surveys per year to provide feedback on specific health and care topics or experience of using our services 
• Inviting members to take part in focus groups - to give personal feedback on topics that are of interest to members 
• Taking part of our editorial group to give feedback on communications materials and engagement plans
• Helping to develop digital and channel shifting initiatives – providing feedback and ideas to shape digital and innovation projects
  
  

Time commitment

Around 15 to 30 minutes each month, although there is likely to be scope to be more involved if you wish. 

Register your interest

Please complete this online form by Sunday 30 June to register your interest. 

There is also a section on the form where we ask you what we can do to help make it possible for you to attend.

Privacy notice: 

We will use the information you provide to inform the development of health and care services in Cornwall and Isles of Scilly. The Data Controller for the information you provide in this survey is Cornwall Council, New County Hall, Treyew Road, Truro TR1 3AY. Data Protection Registration Number: Z1745294. Once the survey has closed, your data will be held within Cornwall Council’s secure network and premises for up to 2 years. Where we ask you to supply personal data on this form, we will only make access to this data available to authorised members of staff who are required to process it for the purposes outlined in this privacy notice. Please note that other information you provide, such as responses to open questions, may be published in full. The survey results will be analysed and a summary report will be shared through the Let's Talk website.

Do you, or someone you care for, have an interest in women's health?

Or perhaps you have a family history of women's health related conditions, or know someone well who has a women's health condition? 

We are looking for local people across Cornwall and Isles of Scilly with lived experience of women's health issues and women's health services, to provide feedback and ideas to help us shape the way we provide women's health services in the future.

What's involved? 

We want to form a group of people with lived experience of women's health conditions, so we can ask for your help to provide feedback on current and shape future services. 

If you join our group, there will be different ways for you to get involved and have your say, with both online / virtual and in-person opportunities available. This could include taking part in surveys, giving feedback in a group discussion, to being involved in work to 'design' future services alongside our staff.

You will be able to get involved in ways that suit you, and to share your feedback on matters that are most important to you.

Register your interest

Please complete this online form by Sunday 30 June to register your interest. There is also a section on the form where we ask you what we can do to help make it possible for you to attend.

Privacy notice: 
We will use the information you provide to inform the development of health and care services in Cornwall and Isles of Scilly. The Data Controller for the information you provide in this survey is Cornwall Council, New County Hall, Treyew Road, Truro TR1 3AY. Data Protection Registration Number: Z1745294. Once the survey has closed, your data will be held within Cornwall Council’s secure network and premises for up to 2 years. Where we ask you to supply personal data on this form, we will only make access to this data available to authorised members of staff who are required to process it for the purposes outlined in this privacy notice. Please note that other information you provide, such as responses to open questions, may be published in full. The survey results will be analysed and a summary report will be shared through the Let's Talk website.

Do you, or someone you care for, have type 1 diabetes, type 2 diabetes, or gestational diabetes?

Or perhaps you have a family history of diabetes, or know someone well who has diabetes? 

We are looking for local people across Cornwall and Isles of Scilly with lived experience of diabetes and diabetes services, to provide feedback and ideas to help us shape the way we provide diabetes care in the future.

What's involved? 

We want to form a group of people with lived experience of diabetes, so we can ask for your help to provide feedback on current and shape future services. 

If you join our group, there will be different ways for you to get involved and have your say, with both online / virtual and in-person opportunities available. This could include taking part in surveys, giving feedback in a group discussion, to being involved in work to 'design' future services alongside our staff.

You will be able to get involved in ways that suit you, and to share your feedback on matters that are most important to you.

Register your interest

Please complete this online form by Friday 31 May to register your interest. There is also a section on the form where we ask you what we can do to help make it possible for you to attend.

Privacy notice: 
We will use the information you provide to inform the development of health and care services in Cornwall and Isles of Scilly. The Data Controller for the information you provide in this survey is Cornwall Council, New County Hall, Treyew Road, Truro TR1 3AY. Data Protection Registration Number: Z1745294. Once the survey has closed, your data will be held within Cornwall Council’s secure network and premises for up to 2 years. Where we ask you to supply personal data on this form, we will only make access to this data available to authorised members of staff who are required to process it for the purposes outlined in this privacy notice. Please note that other information you provide, such as responses to open questions, may be published in full. The survey results will be analysed and a summary report will be shared through the Let's Talk website.